Karen's Advocacy Work
Actress Kathleen Turner gave an inspirational speech about her RA story at an Arthritis Foundation, New York Chapter event in October 2006.
I have had rheumatoid arthritis for more than half of my life. It has been
a journey which has both fulfilled my life and shattered it. Through the acceptance
of my disease and by learning how to manage it, I have been able to help and
inspire people of all ages who are faced with the battle of learning to live
with a chronic disease. My advocacy work brings me so much satisfaction.
I then decided to pursue some advocacy work in the U.S.A. and attended the Arthritis Summit in Washington D.C. in March 2003. I was instrumental in re establishing communications between Centocor and the Arthritis Foundation New York, which led in part to the Joint Effort program. Centocor then asked me to be the key spokes person in their patient video about Remicade.
I only began to tell my story after I left Australia. It wasn’t until then that I realized just what I had achieved in my fight against this disease. I wanted to inspire and empower others. I have enjoyed speaking at various events for the Arthritis Foundation in New York and New Jersey. My most memorable speeches have been at the Roosevelt Hotel in New York City with Sopranos star Aida Turturro and at the launch of the Arthritis Walk breakfast in 2005 at the famous Met Life Building in New York. Supported by family and friends, I am a keen participant in the annual Arthritis Walk. Last year I was also proud to be nominated as a Board Member for the Arthritis Foundation, New York Chapter.
I accept my illness but will never let it define me, or stop me from pursuing my hopes and dreams.
Karen with Sporanos star and
COPYRIGHT 2006- Karen Ager